Advocacy

 

It is impossible to solve the problems of families with disabled children without changing the attitudes of society and the state. That’s why one of the Foundations most  important activities is advocacy.

What we do:

  • Building awareness of the challenges people with special needs face;
  • Providing a platform for public discussion of the issues and the various solutions;
  • Advocacy work aimed at securing recognition of the rights of this group of the population;
  • Cooperation with the media and journalists that cover this issue, providing expert assessment, assistance in gathering information for publications.

 

What we’ve done:

“Don’t be Silent” – 2015

“Don’t be silent” campaign, which aims to change social attitudes towards people with developmental disorders. Dima Bilan released the music video for his track “Don’t be silent” at the beginning of September, with the participation of Natalia Vodianova and Nika Kirillova, who has Down’s syndrome. This is the first music video ever released in Russia that focuses on people with developmental disorders and it has already had a huge impact on society.

It has empowered a great many parents of children with special needs to take their children out in public, talk openly about the problems they face and initiate public debate about how to ensure that our society is truly open to all. We have received letters from mothers of children with special needs, parents’ organisations that work with children with special needs, and ordinary people who, like us, believe that remaining silent about disabilities is not a solution to the issue.

 

Social Media Photo Project “Every Child Deserves a Family” – 2014

Photo project “Every Child Deserves a Family” was a campaign, which aimed to attract the public attention to the problem of the institutionalisation of children with special needs in Russia.

More than 100 Russian and world-famous celebrities and supporters took part in our photo project, including Stella McCartney, Anna Wintour, Diane von Furstenberg, Danila Kozlovsky, Vincent Pérez, Kseniya Sobchak, Sergey Shnurov, Kseniya Rappoport and many others. Thanks to the inspiring engagement of our supporters, including many world-renowned friends of the Foundation, we are able to achieve a bigger outreach in campaigning for every child’s right for a loving and caring family. Learn more…

 

Social Campaigning on Channel One Russia – 2014

Thanks to the support of Federal Channel One, film director Andrey Zaytsev and production team “Stink Moscow”, an original charity advertisement about the Naked Heart Foundation was broadcast during prime time on Russia’s most watched Federal channel in 2013.

The 30-second ad, which was specially created for the children’s version of the popular TV programme “The Voice”, addressed the issue of children with disabilities and focused on two main areas – the creation of a system of free services for vulnerable families bringing up children with special needs and the construction of inclusive children’s play facilities.

The purpose of the ad was to raise public awareness about this topic, and to teach people the values of respect and tolerance, on the basis of which we can support the building of a healthy society that is accepting of all people, regardless of their physical or mental capabilities. It is important to initiate the conversation about children with disabilities, acknowledge their existence in society and emphasise the fact that we all have a lot more in common with each other than we might surmise. Learn more…

 

Photo Exhibition “What is Autism?” – 2013

Within the III International Forum, photographer Natalia Kharlamova and Naked Heart Foundation joined together to organise a weekly street photography exhibition in the heart of Moscow called “What is autism?”. The exhibition featured candid portraits of children with autism accompanied by personal and engaging stories from their parents and teachers.

“Play4life” – 2012

On the 1st June 2012, in collaboration with the Government of the Russian Federation, the Foundation held a charity football match at the Luzhniki Stadium Grand Arena.

The goal of the event was to draw public attention to the issue of disability in Russia and to present a schedule of amendments of the Civil Code, prepared by the legal team of the Centre of Curative Pedagogics and financed by the Naked Heart Foundation, to Deputy Prime Minister Arkady Dvorkovich.

In the presence of the press, Mr. Dvorkovich promised to take the amendments into consideration. As a result, the responsible authorities have begun to evaluate them.

Arkady Dvorkovich, Natalia Vodianova, Samuel Eto’o, Igor Vernik, Ilya Averbukh, Vladimir Beschastnykh, Dmitry Malikov, Mikhail Idov participated in the match to support the initiative.

 

“Unlimited Possibilities” Photography Project – 2012

In July 2012, in collaboration with Glamour magazine and photographer Vlad Loktev, a unique photo shoot was organised.

It focused on Russian Paralympic athletes and those people closest to them. The purpose of the shoot was to demonstrate the importance of warmth and support in families of children with disabilities.

It was timed to coincide with the Paralympic Games in London. The photos were published in Russian Glamour magazine and exhibited in Gorky Park in Moscow and Bosco Sport shops.

As a Sochi-2014 ambassador, Natalia considered it necessary to draw public attention to the Paralympic Games.

The project was published in the September issue of Glamour magazine. Following publication, and with the support of Bosco, the images were exhibited first in Gorky Park and then in Moscow’s GUM shopping centre.

 

Learn about other projects

Our projects

Family Support Centre

One of our main working objectives is to create a network of family support centres for children with special needs and their families. Their purpose is to provide combined psychological, educational, social, legal, therapeutic, and other professional assistance. Our first Family Support Centre was opened in Nizhny Novgorod.

 

Forum

Our annual international "Every Child Deserves a Family" forum is a unique platform for dialogue between Russian and foreign child development experts, which allows representatives from various regions of Russia to exchange views and experience. It is also a step forward towards developing a professional community in Russia.

 

Legal Project

We are supporting projects run by the legal department of the Centre for Curative Pedagogics in Moscow, and relevant projects run by other organisations, aimed at ensuring the rights of children with disabilities and raising legal awareness among parents and specialists working in the field.

 

Sensory integration and occupational therapy rooms

The Naked Heart Foundation is currently working to create fully-equipped sensory integration and occupational therapy rooms for children with autism and other developmental disorders, with the aim of teaching those children coping mechanisms and enabling them to reach their full potential.

 

Webinars

The objective of our interactive online seminars is to introduce people to up-to-date, proven methods of working with people with disabilities. They are held on a regular basis and cover topics such as autism, communication and foster care. The webinars are aimed primarily at the Russian audience.

 

Joint projects

Normalisation

The aim of this project is to support NGOs that provide psychological, medical, therapeutic and social support for children with disabilities and their families; families intending to adopt, take guardianship of, or foster a child with disabilities; and disadvantaged families or families in crisis.

 

Integrative Summer Camps

We support projects to run summer and autumn integrative camps for children with special needs. Such camps create an environment in which children can relax emotionally, recover their health, have much-needed new experiences and communicate in a variety of different ways.

 

Education Project

The purpose of the Education Programme is to allow specialists from organisations working with children with special needs and their families to learn modern and effective working methods, exchange experience with colleagues and take part in education programmes involving international experts.